A coordinated transition model for patients with cystinosis: from pediatric to adult care

Special article

Transición coordinada del paciente con cistinosis desde la medicina pediátrica a la medicina del adulto

Gema Aricetaa,

Corresponding author

gariceta@vhebron.net

Corresponding author.

, Juan Antonio Camachob, Matilde Fernández-Obispoc, Aurora Fernández-Polod, Josep Gámeze, Judit García-Villoriaf, Enrique Larac, Pere Leyesg, Nieves Martín-Beguéh, Manel Perellói, Guillem Pintos-Morellj, Roser Torrak, J. Vicenç Torregrosal, Sandra Torres-Sierram, Anna Vila-Santandreub, Ana Güelln, Grupo T-CiS.bcn o

a Servicio de Nefrología Pediátrica, Hospital Universitari Vall d’Hebron, Grupo Renaltube, Redinren, Universidad Autónoma de Barcelona, Barcelona, Spain

b Servicio de Nefrología Pediátrica, Hospital San Joan de Déu, Barcelona, Spain

c Servicio de Nefrología Pediátrica, Hospital Universitari Vall d’Hebron, Barcelona, Spain

d Servicio de Farmacia, Hospital Universitari Vall d’Hebron, Barcelona, Spain

e Servicio de Neurología, Hospital Universitari Vall d’Hebron, Barcelona, Spain

f Servicio Bioquímica y Genética Molecular, Sección de Errores Congénitos del Metabolismo, Hospital Clínic, IDIBAPS y CIBERER, Barcelona, Spain

g Servicio de Endocrinología y Nutrición, Hospital Universitari Clínic, Barcelona, Spain

h Unidad de Oftalmología Pediátrica, Hospital Universitari Vall d’Hebron, Barcelona, Spain

i Servicio de Nefrología, Hospital Universitari Vall d’Hebron, Barcelona, Spain

j Unidad de Nefrología Pediátrica, Hospital Universitari Germans Trias i Pujol, Badalona, Barcelona, Spain

k Enfermedades Renales Hereditarias, Servicio de Nefrología, Fundació Puigvert, AIRG-E, Redinren, Universidad Autónoma de Barcelona, Barcelona, Spain

l Servicio de Nefrología y Trasplante Renal, Hospital Universitari Clínic, Barcelona, Spain

m Escuela Universitaria de Enfermería, Universidad Autónoma de Barcelona, Barcelona, Spain

n Product Affairs, Orphan Europe Grupo Recordati, Spain

o Working Group for Multidisciplinary Care and Transition from Paediatric to Adult Units in Cystinosis, Barcelona, Spain

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Article information

ISSN: 20132514
Original language: English

DOI:10.1016/j.nefroe.2016.12.006

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