Consensus document
Cystinosis in adult and adolescent patients: Recommendations for the comprehensive care of cystinosis
Cistinosis en pacientes adolescentes y adultos: recomendaciones para la atención integralde la cistinosis
Gema Aricetaa,
, Juan Antonio Camachob, Matilde Fernández-Obispoc, Aurora Fernández-Polod, Josep Gameze, Judit García-Villoriaf, Enrique Lara Monteczumac, Pere Leyesg, Nieves Martín-Beguéh, Federico Oppenheimeri, Manel Perellój, Guillem Pintos Morellk, Roser Torral, Anna Vila Santandreub, Ana Güellm, Grupo T-CiS.bcnn
Corresponding author
gariceta@vhebron.net
gariceta@bilbaodigital.net
Corresponding author: Gema Ariceta, Servicio de Nefrología Pediátrica. Hospital Universitari Vall d’Hebron. Grupo Renaltube. Redinren, Pg/ Vall d’Hebron 119-129, 08034 Barcelona, Spain. Tel.: 934893082.
gariceta@bilbaodigital.net
Corresponding author: Gema Ariceta, Servicio de Nefrología Pediátrica. Hospital Universitari Vall d’Hebron. Grupo Renaltube. Redinren, Pg/ Vall d’Hebron 119-129, 08034 Barcelona, Spain. Tel.: 934893082.
a Servicio de Nefrología Pediátrica, Hospital Universitari Vall d’Hebron, Grupo Renaltube, Redinren, Barcelona, Spain
b Servicio de Nefrología Pediátrica, Hospital San Joan de Déu, Barcelona, Spain
c Servicio de Nefrología Pediátrica, Hospital Universitari Vall d’Hebron, Barcelona, Spain
d Servicio de Farmacia, Hospital Universitari Vall d’Hebron, Barcelona, Spain
e Servicio de Neurología, Hospital Universitari Vall d’Hebron, Barcelona, Spain
f Servicio Bioquímica y Genética Molecular. Sección de Errores Congénitos del Metabolismo. Hospital Universitari Clínic. IDIBAPS y CIBERER, Barcelona, Spain
g Servicio de Endocrinología y Nutrición, Hospital Universitari Clínic, Barcelona, Spain
h Servicio de Oftalmología, Hospital Universitari Vall d’Hebron, Barcelona, Spain
i Servicio de Nefrología y Trasplante Renal, Hospital Universitari Clínic, Barcelona, Spain
j Servicio de Nefrología, Hospital Universitari Vall d’Hebron, Barcelona, Spain
k Unidad de Nefrología Pediátrica, Hospital Universitari Germans Trias i Pujol, Badalona, Barcelona, Spain
l Servicio de Nefrología, Fundació Puigvert, AIRG-E, Redinren, Barcelona, Spain
m Product affairs, Orphan Europe - Recordati Group, Spain
n TCiS.bcn: Working group for multidisciplinary care and transition from paediatric to adult units in cystinosis, Barcelona, Spain
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