Cystinosis in adult and adolescent patients: Recommendations for the comprehensive care of cystinosis

Consensus document

Cistinosis en pacientes adolescentes y adultos: recomendaciones para la atención integralde la cistinosis

Gema Aricetaa,

Corresponding author

gariceta@vhebron.net
gariceta@bilbaodigital.net

Corresponding author: Gema Ariceta, Servicio de Nefrología Pediátrica. Hospital Universitari Vall d’Hebron. Grupo Renaltube. Redinren, Pg/ Vall d’Hebron 119-129, 08034 Barcelona, Spain. Tel.: 934893082.

, Juan Antonio Camachob, Matilde Fernández-Obispoc, Aurora Fernández-Polod, Josep Gameze, Judit García-Villoriaf, Enrique Lara Monteczumac, Pere Leyesg, Nieves Martín-Beguéh, Federico Oppenheimeri, Manel Perellój, Guillem Pintos Morellk, Roser Torral, Anna Vila Santandreub, Ana Güellm, Grupo T-CiS.bcnn

a Servicio de Nefrología Pediátrica, Hospital Universitari Vall d’Hebron, Grupo Renaltube, Redinren, Barcelona, Spain

b Servicio de Nefrología Pediátrica, Hospital San Joan de Déu, Barcelona, Spain

c Servicio de Nefrología Pediátrica, Hospital Universitari Vall d’Hebron, Barcelona, Spain

d Servicio de Farmacia, Hospital Universitari Vall d’Hebron, Barcelona, Spain

e Servicio de Neurología, Hospital Universitari Vall d’Hebron, Barcelona, Spain

f Servicio Bioquímica y Genética Molecular. Sección de Errores Congénitos del Metabolismo. Hospital Universitari Clínic. IDIBAPS y CIBERER, Barcelona, Spain

g Servicio de Endocrinología y Nutrición, Hospital Universitari Clínic, Barcelona, Spain

h Servicio de Oftalmología, Hospital Universitari Vall d’Hebron, Barcelona, Spain

i Servicio de Nefrología y Trasplante Renal, Hospital Universitari Clínic, Barcelona, Spain

j Servicio de Nefrología, Hospital Universitari Vall d’Hebron, Barcelona, Spain

k Unidad de Nefrología Pediátrica, Hospital Universitari Germans Trias i Pujol, Badalona, Barcelona, Spain

l Servicio de Nefrología, Fundació Puigvert, AIRG-E, Redinren, Barcelona, Spain

m Product affairs, Orphan Europe - Recordati Group, Spain

n TCiS.bcn: Working group for multidisciplinary care and transition from paediatric to adult units in cystinosis, Barcelona, Spain

Read

18156

Times
was read the article

4082

Total PDF

14074

Total HTML

Share statistics

Article information

ISSN: 20132514
Original language: English

DOI:10.1016/j.nefroe.2015.06.010

The statistics are updated each day

Year/Month	Html	Pdf	Total

2024 November	79	59	138
2024 October	105	72	177
2024 September	120	53	173
2024 August	123	102	225
2024 July	84	55	139
2024 June	111	76	187
2024 May	109	57	166
2024 April	107	72	179
2024 March	128	51	179
2024 February	87	64	151
2024 January	58	38	96
2023 December	78	54	132
2023 November	79	60	139
2023 October	99	44	143
2023 September	64	41	105
2023 August	52	51	103
2023 July	78	42	120
2023 June	111	56	167
2023 May	101	50	151
2023 April	82	41	123
2023 March	135	55	190
2023 February	100	49	149
2023 January	109	54	163
2022 December	153	55	208
2022 November	82	39	121
2022 October	131	59	190
2022 September	77	62	139
2022 August	103	62	165
2022 July	97	68	165
2022 June	117	54	171
2022 May	126	56	182
2022 April	188	63	251
2022 March	131	61	192
2022 February	107	57	164
2022 January	84	57	141
2021 December	201	57	258
2021 November	184	59	243
2021 October	382	69	451
2021 September	99	25	124
2021 August	124	38	162
2021 July	129	43	172
2021 June	139	44	183
2021 May	282	42	324
2021 April	211	34	245
2021 March	101	52	153
2021 February	110	38	148
2021 January	100	39	139
2020 December	70	42	112
2020 November	97	33	130
2020 October	57	27	84
2020 September	67	32	99
2020 August	76	19	95
2020 July	97	26	123
2020 June	90	28	118
2020 May	119	36	155
2020 April	79	33	112
2020 March	102	43	145
2020 February	240	46	286
2020 January	133	59	192
2019 December	124	57	181
2019 November	132	43	175
2019 October	109	39	148
2019 September	123	42	165
2019 August	78	35	113
2019 July	66	30	96
2019 June	69	42	111
2019 May	76	44	120
2019 April	115	63	178
2019 March	73	35	108
2019 February	65	37	102
2019 January	73	53	126
2018 December	244	58	302
2018 November	528	32	560
2018 October	117	30	147
2018 September	99	19	118
2018 August	70	18	88
2018 July	78	13	91
2018 June	92	19	111
2018 May	112	14	126
2018 April	95	12	107
2018 March	59	12	71
2018 February	43	18	61
2018 January	57	8	65
2017 December	54	9	63
2017 November	75	16	91
2017 October	64	13	77
2017 September	60	10	70
2017 August	58	11	69
2017 July	66	14	80
2017 June	71	12	83
2017 May	58	19	77
2017 April	74	18	92
2017 March	66	21	87
2017 February	102	26	128
2017 January	43	30	73
2016 December	81	6	87
2016 November	200	38	238
2016 October	169	31	200
2016 September	306	18	324
2016 August	404	25	429
2016 July	323	39	362
2016 June	199	0	199
2016 May	241	0	241
2016 April	249	0	249
2016 March	228	0	228
2016 February	194	0	194
2016 January	141	0	141
2015 December	185	0	185
2015 November	172	0	172
2015 October	170	0	170
2015 September	248	0	248
2015 August	150	0	150
2015 July	42	0	42

Show all

Indexed in:

Follow us:

Statistics

Indexed in:

Follow us:

Statistics

Subscribe to our newsletter